1. Let’s have a look at some of them. 1. 1. 4. Goodbye and Don’t Forget To Grind The Bastards Down! Her children and husband all had (and still have) varying degrees and combinations of ADHD and Autism Spectrum Disorder. If denying or delaying doesn’t work, divert. 3. Ask them if they get a buzz off the meds. First, here’s a little bit of background. She went to one of these loathsome busybodies that try and help and advocate for such people. Despite being angry and upset, I managed to stay calm and polite, except for a couple of little jabs & swipes, as I asked questions and gave feedback to the authors, and yes the medication also helped even when my questions were evaded and ignored. mental health sector. That’s a lot of us! You can also join their Facebook group here: https://www.facebook.com/groups/585995824915983/. You should say something like: “I feel your pain. Be patronising. I’ve put links to the Framework as well as to the Time for a Paradigm Shift at the very end of this post in the References section. Since I needed to understand the background to this situation, I read all available BNSSGCCG’s minutes and reports. Public health policy. Hi. PROUD Letters of invitation – adults version, 5. Through CoCA, the researchers hope to raise awareness of ADHD, reduce the stigma associated with ADHD, and empower prevention and therapy approaches as well as providing new tools to prevent ADHD from escalating into additional disorders. ADHD and Me. To see a specialist they have to go through you! phone 07816 779 473. may emerge. Instead I decided to leave. Those who feel they are a Narcissist, we ask you respect the privacy and healing process of our members and invite you to seek support in one of our site's many other groups… One good example we know of was someone who had an assessment saying “Emma doesn’t have ADHD because she can concentrate sometimes.” [Editor’s note: if you don’t know why this is nonsense, then you really don’t understand ADHD. Mental Wellbeing Support. The sods should be grateful. 1. The facilitated discussion groups are an opportunity for our members to come together and share information, advice and personal experiences around an agreed topic, with the potential to tackle some of the core issues of living with ADHD. Sheffield Flourish: ADHD Adult Peer Support Group; meets at 6-7:30 pm on the second Wednesday of every month at Sheffield NHS Walk-in Centre Rockingham House, 75 Broad Lane, Sheffield S1 3PB. The Core Working Group (CWG) is now having weekly working meetings and is updating the Full Working Group (FWG) on a monthly basis. Where to go for private diagnosis in/near Nottinghamshire? By the way; Phil Wilshire probably should have declared his interest in the Framework as he’s listed on page 3 as having “significant input into Chapter 8” which is titled “Ways forward” and contains the following sections: 1. together expert clinicians (psychiatrists and neurologists), patient representatives, academics and mental health advocacy groups to explore the reasons why transition of care is currently suboptimal, discuss and agree on the principles for good transition and develop practical recommendations for improving transition to adult mental healthcare services. We aim to support clinicians and allied professionals to identify and meet the needs of children and young people affected by this disorder. Bristol Furthermore, they state that there are no ” consistent associations between functional psychiatric diagnoses [e.g. “Oo Doctor, I think I may have ADHD. See Appendix A for details, comments (blue text), as well as questions for the CCG (green text) to answer. Adult ADHD Support Group: This is a monthly structured support group that meets on the first Wednesday of every month from 6:30 pm – 8:30 pm. It just helps the patient control the ADHD symptoms. And I now have very serious concerns about BNSSG’s management of the waiting list. That’s all we needed to find our own way, to thrive and flourish. The groups are adapting to the local context and the needs of their members with ADHD and provide more and more services that are not provided anywhere else. 1. If you’d prefer a face-to-face support group with people who live near you, we have information to help you start or maintain an adult ADHD support group. We are now waiting to hear from all attendees. Liver ones are good, but do as many as you can. Others have known they had it since childhood. Swiftly followed by anger; “Who can I blame?” “Where shall I point my finger?” You see, all this correlated almost exactly with our own experiences in the ADHD world. Despite this, access to adult ADHD services Many people with attention deficit hyperactivity disorder (ADHD) dont know they have it until theyre adults. In Defense of Reading: an essential tool to make sense of the world, Underestimating the Challenges of Avoiding a Ghastly Future: biodiversity loss &, Sadiq Khan declares Covid emergency in London. Needless to say, each deadline sailed by without her hearing a dickybird. Well not exactly. It will be an Adult ADHD Service that everyone can be proud of! All Party Parliamentary Group for ADHD. Yes, you read correctly, ignore them. Please contact the (real) author: theunreadyaethelred@gmail.com, If you have or might have ADHD or otherwise been affected by this article please come to an ADHD support group or join our forum, and if you are having trouble getting treatment Here’s the relevant page on NICE, and here’s a summary of your rights and here are some more – try printing them out and taking them with you (sorry, currently in England, other regions to follow), and of course, please tell your story be it gruesome or funny – they’re often both – to Aethelred The Unready who is currently saddling his horse to sally forth against the ranking hordes of Schweinekopfs.]. Of course, if they go on bogging up their lives because of the ADHD they’ll go on feeling depressed and anxious, so you never have to treat the ADHD! 1. Oh, and any possible addiction or substance abuse even if you only have circumstantial evidence is a great excuse to get them off the meds. ADHD Wiltshire; Email: swepan@gmail.com, Phone:   07832 193362, Web:  http://adhdwiltshire.co.uk/contact/. Professional help and signposting. . We suggest that you contact the leader of the group before attending/joining to make sure the group suits your needs. etc.“!!! 8. ADDISS – ADD Information and Support Service – a UK charity mainly focused on helping parents and children. Since ADHD is a lifespan disorder, we are including on this page not  only support groups for adults but also support groups for children and parents and some of the groups are closed Facebook groups. . They will help make the travel arrangements as convenient as possible and will reimburse all of your travel expenses. In one list of possible but unlikely side effects is “Behaving With Excessive Cheerfulness And Activity”! 1. https://www.facebook.com/groups/adhdsupportiow/, 1. The Clinic staff from 2014 to date, continuously tried to increase capacity to match the ever-growing demand until it seems they could do no more. Name changed, BTW.]. Commissioners are responsible for enabling patient use of the Guidelines not only within the context of funding but also within context of their legal duties of eliminating discrimination, advancing opportunities and reducing health inequalities. Pinpoint’s website is http://www.pinpoint-cambs.org.uk/, 1.This is a Facebook group for parents on the IOW to chat with other parents. You see, I couldn’t just walk away telling myself that the fuss would die down in a few days and be forgotten. Next, on page 5, under the heading ‘Document summary‘, I learnt the reason for the existence of the Framework as follows (please bear with me as I give you these somewhat tedious details, their relevance will be more evident later): In 2013, the Division of Clinical Psychology (DCP) of the British Psychological Society Send them to the wrong type of therapy – in particular to a therapist that knows little of ADHD. This is why medical researchers have developed the kind of rules we discussed earlier to try to ensure that the bodily patterns they describe are ‘real’ and not illusory. And if they’ve overlooked their legal obligations, here’s a reminder: “those subject to the equality duty must, in the exercise of their functions, have due regard to the need to: Eliminate unlawful discrimination, harassment and victimisation and other conduct prohibited by the Act. Here’s a tip – try to blame it all on Americans. The group included expert stakeholders from the field of transition of care, mental health in general and attention-deficit hyperactivity disorder (ADHD). 1 in 5 adults reported that they had considered taking their own life at some point.”. 1. Unit 5, Tayview Industrial Estate, Lower Friarton Perth, PH2 8DG adhdperth@aol.co.uk 01738 587261. In addition, the group members already assessed strongly reiterated their support for the clinic as well as their high regard for the staff whilst also expressing concern that the ever increasing waiting list is now putting too much pressure on the service as a whole. The critics, including the authors, using these arguments conveniently overlook the fact that researchers from both the medical field and the pharmaceutical industry need to work together in order to find and develop effective treatments. Instead, if you really care about helping people to thrive, helping the country to prosper (you do, don’t you? The Scottish ADHD Coalition was launched in June 2017 to bring together the voluntary organisations providing support to adults and children with Attention Deficit Hyperactivity Disorder (ADHD) in Scotland, and their parents, carers and families. In April 2014, one of the CCG’s operational delivery projects for the ADHD service was to ‘achieve funding’ to resource its then current growth. Now read on…]. The appendix can be read here and the letter is below: Dr Jonathan Hayes, Clinical Chair We encourage you to find a group in your area. We also have a number of resources for individuals who would like to form a Chapter. F) And finally, if all else fails, remember to. The framework is not backed by reliable research and the authors lack the depth of knowledge and experience of the DSM authors. That works. Contact: Anne Davies, 1st Floor, Cable Plaza, Waterfront West, BRIERLEY HILL, West Midlands DY5 1LW; Email: anne@Welovecarers.org; Tel: 07763 875 654; website: http://welovecarers.org/, 2. It’s part of the treatment! Posted: 01/01/2021. ADHD Northwest: Support & information for families & individuals. My reasons for giving you those dull details at the beginning. Diagnosis of ADHD Lincoln ADHD Support Group: Supporting families and individuals living with ADHD. We can’t have that. On Tuesday, 28 April 2020,  the Bristol Adult ADHD Support Group, the Bristol, North Somerset & South Gloucestershire CCG (BNSSGCCG) and Avon and Wiltshire Mental Health Partnership NHS Trust (AWP) agreed to form a joint, multi-partner, collaborative working group with the dual purpose of addressing the waiting list issues as a priority while, at the same time, methodically analysing problems that led to the waiting list and then devising and implementing solutions. During that time the deadline for the CCG’s response has been extended twice from the original date of Tuesday, 14 January 2020; first to Tuesday, 28 January (need time to finalise the response) and then again to Monday, 3 February 2020 (for review by a Director). More information and contact details are available on their website here: http://in-it-together.weebly.com/, 1. The CCGs are membership bodies made up of the local GP practices and they are led by a governing body also made up of GPs some clinicians, nurses and lay people. ASD/Aspergers/ADHD Support Group Bedfordshire: New support group started for parents of children with ADHD/ASD and Aspergers. A woman was worried about having ADHD and sought an assessment. It is complex and difficult to diagnose. It matters because we understand too well that surviving is not thriving and that knowledge is painful! Indeed, it is held in high regard by service users. It is run jointly by a parent/carer committee and the Child & Adolescent Mental Health Service Community ADHD nurse. See also Bristol Adult ADHD Support Group, 4. We filed a Freedom of Information request with BNSSG CCG on 12 December 2019 for documents they described in their minutes (discussions about the Adult ADHD service) but had not made available online. 6. There are all sorts of excuses, sorry, I mean reasons. Suppose they actually are getting some treatment (thankfully probably only medication on a long-term basis) all is not lost. Not all psychologists support the framework, and the same goes for my fellow service users. (NB: Although autism in its most severe forms fits the profile of a neurodevelopmental disorder of some kind, the debates about these diagnoses are particularly complex . Addressing the Balance: A Scottish charity and social enterprise company limited by guarantee set up to help adults with Attention Deficit Hyperactivity Disorder to self manage their condition and achieve better wellbeing and resilience in their lives. The policy is linked to this page. Parents and Carers. We weren’t sure what Bristol, North Somerset and South Gloucester Clinical Commissioning Group (BNSSGCCG) were doing about it, if anything, so we decided to try and find out. It’s titled  “The future of clinical psychology in the Society” which mentions plans for a another UK association for Clinical Psychologists. Or even better, just come up with something new to worry them. Here at AADD-UK we avidly followed the news about mental health issues during Mental Health Awareness Week. But they all have in common that they provide a much needed space for information, help and support for individuals who are or have yet to be diagnosed with ADHD as well as for their relatives and partners. iDHD UK is a new charity focused on ADHD. Everything stated in this letter regarding the CCG’s responsibilities as well as our offer of help still stands. We sent the BPS & authors of the Power Threat Meaning Framework a note today, via Twitter, to say that unless they promise by Friday, 4th May, in writing, that ADHD will be deleted from the PTMFramework we will be taking further action. Registered clinical psychologists promoted it on Twitter, and the BPS and DPC logos are displayed on its front cover. Our letter is only addressing the stigmatising attitude displayed towards ADHD people who have benefited from a psychiatric diagnosis. I’m going to pause now and give myself a pat on the back, as once advised by a psychotherapist. 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